Well that worked out well.
Tracey and Rhys made their way into Ward 38 for 7:30am and sat in the playroom waiting to find out if a bed was available.
After a while the anesthetist arrived and went over everything with him. They then had to wait for Mr Edwards the surgeon.
At 9 I arrived in the hospital and found them still waiting. Another family were also waiting for a bed.
Tracey nipped out to get some breakfast while Rhys and I sat there.
The play specialist arrived and began tidying the room. As Rhys is interested in becoming a play specialist in the future they chatted about what he's doing and what he needs to do to become one.
Tracey returned and it was my turn to grab some breakfast.
As I was on my way back Tracey texted me to let me know that Mr Edwards had been in and that Rhys' operation was cancelled. There were no beds available due to the hospital being bust and there being a lot of emergency admissions. It would also take a number of hours to perform Rhys' operation so it was better to cancel and reschedule.
The operation has to be performed within 30 days of being cancelled it seems and due to the amount of time needed to complete it is likely to be at least 2 weeks away.
Its frustrating for all of us. Making arrangements for time off work, rearranging appointments, arranging accommodation, traveling to and from Bristol, preparing for serious surgery and then for it not to happen.
But we're back home and just have to wait until the new appointment comes through.
Friday 19 June 2015
Wednesday 17 June 2015
Here we go again!
Back in Bristol so that Rhys can have the operations to remove the meningioma.
What a day its been!
Tracey drove us from Yeovil to Bristol. A nice steady trip and something she'd not done before.
After having got up very early it was a race between Rhys and I to see who could doze off the quickest so that the other would have to act has "second SatNav".
Naturally the teenager won!
A short visit with Rhys' Great Uncle Bulgaria and it was time to head for the hospital.
A change of driver and it was time for me to get us across Bristol to Sam's House.
A short, and amazingly quiet drive later and we were unpacking the car and putting our things into, yes you've guessed it, Room 10. The one we've stayed in on out last few trips to Bristol (bone marrow transplant, surgery to remove the tumour and radiotherapy after the tumour had been removed).
Having unpacked we made our way into town to grab a bite to eat at Tracey's favourite pub, Rhys' too!
Lunch over Tracey and Rhys made their way to the hospital as he had an appointment for a CT scan at 3pm. I caught up with them just as he'd finished.
Returning to the X-Ray department reception we discovered the MRI scan he also needed would be delayed due to an emergency. With that in mind we decided to pop to Ward 38 where he was supposed to be admitted and see if they had a bed for him. We'd tried to confirm that there was a bed for him, something we'd done several times over the course of the day. Unfortunately we had no luck and so Rhys and I returned to the X-Ray department while Tracey waited on the ward to find out what was happening.
Rhys' scan was delayed for ages and it was after 5pm before we found ourselves in the room with the MRI scanner, Rhys inside the machines and me at the foot of it watching him.
It is a really boring experience just watching so it must be even worse if you are having the scan and have to lie perfectly still.
Prior to the scan Rhys had bloods taken. The nurse that came do them looked at us and asked if he'd been on one of the wards at Frenchay. Rhys was so little at the time that he wouldn't remember it clearly but I said "yes, to have his tonsils removed." After all these years she remembered us.
Returning to Ward 38 we sat around for some time until a nurse confirmed that there were no beds available and he would have to go to Sam's. We would have to ring the people that deal with allocation of beds at 6:30am on Thursday morning to see where they had a bed available for him.
Another early morning!
Leaving the hospital we returned to Sam's and had a bite to eat. Rhys, as he does when we stay here, disappeared to the teenagers' room to play pool, something he thoroughly enjoys doing when we are here, or at CLIC House.
Tracey spent a bit of time when we arrived at Sam's catching up with how various people were. Lots were doing OK, but as we have experienced far too many time over the years, a number have sadly passed away, their illnesses having directly been the cause or having allowed something else to do that job.
As I sit writing this the only sounds are from the various fridge/freezers, the click of pool balls hitting each other and the clunk of balls falling in pockets. Oh, and Tracey and Rhys chatting. All else is quiet.
Thursday morning update: We rung about a bed just after 6:30. There are still no beds available, its hoped that when day surgery opens they will be able to get Rhys a bed in there. In the meantime Rhys and Tracey have to go to Ward 38 for 7:30 and wait around in the playroom until something is sorted. We think that Rhys will be going into the High Dependency Unit following surgery so he should at least have a bed there until they can sort out a bed on another ward.
So with a click of my fingers I'll sign off for now, further updates in due course.
Edited: because my proofreaders spotted two tiny mistakes. Huh!!!
What a day its been!
Tracey drove us from Yeovil to Bristol. A nice steady trip and something she'd not done before.
After having got up very early it was a race between Rhys and I to see who could doze off the quickest so that the other would have to act has "second SatNav".
Naturally the teenager won!
A short visit with Rhys' Great Uncle Bulgaria and it was time to head for the hospital.
A change of driver and it was time for me to get us across Bristol to Sam's House.
A short, and amazingly quiet drive later and we were unpacking the car and putting our things into, yes you've guessed it, Room 10. The one we've stayed in on out last few trips to Bristol (bone marrow transplant, surgery to remove the tumour and radiotherapy after the tumour had been removed).
Having unpacked we made our way into town to grab a bite to eat at Tracey's favourite pub, Rhys' too!
Lunch over Tracey and Rhys made their way to the hospital as he had an appointment for a CT scan at 3pm. I caught up with them just as he'd finished.
Returning to the X-Ray department reception we discovered the MRI scan he also needed would be delayed due to an emergency. With that in mind we decided to pop to Ward 38 where he was supposed to be admitted and see if they had a bed for him. We'd tried to confirm that there was a bed for him, something we'd done several times over the course of the day. Unfortunately we had no luck and so Rhys and I returned to the X-Ray department while Tracey waited on the ward to find out what was happening.
Rhys' scan was delayed for ages and it was after 5pm before we found ourselves in the room with the MRI scanner, Rhys inside the machines and me at the foot of it watching him.
It is a really boring experience just watching so it must be even worse if you are having the scan and have to lie perfectly still.
Prior to the scan Rhys had bloods taken. The nurse that came do them looked at us and asked if he'd been on one of the wards at Frenchay. Rhys was so little at the time that he wouldn't remember it clearly but I said "yes, to have his tonsils removed." After all these years she remembered us.
Returning to Ward 38 we sat around for some time until a nurse confirmed that there were no beds available and he would have to go to Sam's. We would have to ring the people that deal with allocation of beds at 6:30am on Thursday morning to see where they had a bed available for him.
Another early morning!
Leaving the hospital we returned to Sam's and had a bite to eat. Rhys, as he does when we stay here, disappeared to the teenagers' room to play pool, something he thoroughly enjoys doing when we are here, or at CLIC House.
Tracey spent a bit of time when we arrived at Sam's catching up with how various people were. Lots were doing OK, but as we have experienced far too many time over the years, a number have sadly passed away, their illnesses having directly been the cause or having allowed something else to do that job.
As I sit writing this the only sounds are from the various fridge/freezers, the click of pool balls hitting each other and the clunk of balls falling in pockets. Oh, and Tracey and Rhys chatting. All else is quiet.
Thursday morning update: We rung about a bed just after 6:30. There are still no beds available, its hoped that when day surgery opens they will be able to get Rhys a bed in there. In the meantime Rhys and Tracey have to go to Ward 38 for 7:30 and wait around in the playroom until something is sorted. We think that Rhys will be going into the High Dependency Unit following surgery so he should at least have a bed there until they can sort out a bed on another ward.
So with a click of my fingers I'll sign off for now, further updates in due course.
Edited: because my proofreaders spotted two tiny mistakes. Huh!!!
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