Friday 23 May 2014

One step closer ...

... to knowing if there is a brain in that head of his.

Yesterday was a long and hungry one for Rhys.
After rushing up to Bristol the night before and finally getting to bed after midnight he was up early.
As he was having surgery he wasn't allowed anything to eat.  Even fluids changed from juice/squash to plain water by the early hours.
We'd been told that he would be about 3rd on the list for theatre.  This would mean that he would be having the biopsy about 9am.
After an early morning drive from Yeovil back to Bristol,  including seeing parts of Somerset I would not have expected because of a major incident on the A37, I arrived in Bristol in time for Rhys to go down to theatre, and to keep Tracey company, while we waited for the operation to finish and Rhys to be moved to recovery. 
By the time I arrived Rhys had been told that he wouldn't be going down until late morning.
Ha!
First Rhys had to have a CT scan to allow them to perform the biopsy in the best possible way.  This ended up being at 11:30.
If you're around Rhys be prepared for him to glow in the dark or interfere with radio signals and electrical equipment due to the amount he has been blasted with radiation, magnetic fields and the other forms of energy that have been used to explore his body.
Finally at just around 1:30 he went to theatre. The procedure didn't take too long and he was soon in recovery and then back on the ward in his room.
We bumped into a few people from previous times in Bristol. Both Jamie and Jax have spoken with us.
Now we have to play a waiting game.  The doctors have said it could take anywhere from 4 days to 3 weeks to get the results because they need to dissolve the bone surrounding the tissue they removed before they can examine it. Since Rhys' treatment all hinges on the results of the biopsy he can't start the radiotherapy to destroy any of the tumour in his abdomen that might not have been removed.
Various doctors and consultants popped in after the operation.  Rhys had to stay in overnight so that he could go to the dental hospital to have xrays of his teeth and the area where the Neurofibroma had been spotted.  This has happened and it looks like this might in fact be nothing more than the remnants of the root of a tooth he had removed when he had his braces fitted.
The plan going forward is to hopefully go home today and then come back up for more scans and a discussion with his consultant when the biopsy results are back. At that point we will know what the long term plan for Rhys' treatment is.

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